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Supporting our heroes every step of the way

Help us provide lifelong support to people with congenital heart disease and their families.

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Sign-up today to join our CHD community and access supports and service.

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School
Healthcare Plan

Anxiety around school Facebook (Presentation (169))

A plan to provide all the information
the teaching staff need to manage
your child's care at school

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Women's Mini Marathon 2026

Website - VHI Womens Mini Marathon (1)

Take part and raise funds to support people born with congenital heart disease.

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Charity Ball
2026

0C9A4590

Sat, 3rd October, Fitzwilliam Lawn Tennis Club, D6

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The Beat Goes On Podcast

Subtitle (940 x 788 px) (1)

Episode 1 of new podcast series for adults with CHD

Listen Here

Dublin Marathon 2026

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Charity places available for the Dublin City Marathon, 25th October

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European Summer Camp

ESCamp

Carlingford Adventure Centre10-17th July.

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Children’s Play
Therapy Fund

Children who have been through repeated surgeries and long-stays in hospital can experience levels of anxiety and fears that are difficult to address.
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In-hospital
Respite Fund

When a child is seriously ill and in-hospital, there’s only one place you can be and that’s right by their side, 24/7.

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Psychology
Support Fund

The psychological impact of having a child with a long-term condition can be far reaching and the affects of the trauma may not even be evident.

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  • Congenital heart disease is a general term for a range of birth defects that affect the normal way the heart works.
  • The term congenital means the condition is present from birth.
  • It is the most common birth defect worldwide.
  • It is not one condition. It refers to a set of over 40 different structural issues in the heart and every child will have a different presentation.
  • It affects one in every 100 babies born in Ireland per annum which equates to approx. 500-600 children born annually.
  • Half of these will require open heart surgery to sustain their precious young lives.
  • Over 450 open heart surgeries are carried out annually on children from birth to age 16 at CHI Crumlin.
  • 70% of all cases are now diagnosed at the first maternal scan.
  • There are almost 19,000 people living with congenital heart disease in Ireland. Approx. 2,421 are complex cases.
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