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Heart Children Ireland aims to enable all people affected by Congenital Heart Defects to live the best possible lives. Heart Children Ireland supports parents and families, children, teenagers and adults throughout their lives. 

We are delighted to share Grace’s interview where she tells her story including what it’s like living with CHD during these difficult times. Grace has been a member of Heart Children Ireland for over 20 years. A huge thanks to Grace for sharing this with us ❤️❤️ https://www.instagram.com/tv/CAggd1lAbv9/?igshid=1nbctwvood43d

A message to our members attending the Adult Congenital Unit at the Mater Hospital

The Adult Congenital Heart team wants to assure you that the service is still up and running although in a reduced manpower capacity. If you are a patient of the Mater service and experiencing cardiac symptoms and wish to discuss this with the specialist nursing team the advice line is still operational. If you experience severe cardiac symptoms please present to your local Emergency Department, as all Emergency Departments are open for urgent cardiac issues. Our ED departments are working in a different way in order to protect everyone attending for treatment.

Routine clinics appointments are not taking place at present but urgent cases are having clinical reviews as deemed essential by the team.

Do stay safe ❤️

“Our Hearts Need Yours” Campaign

A message from Damien Duff, Heart Children Ireland’s Ambassador supporting “Our Hearts Need Yours” Campaign.  Just click the link to donate whatever you can and keep all your hearts coming into us ❤️ ❤️ https://give.everydayhero.com/ie/our-hearts-need-yours?fbclid=IwAR0GICgHaizyELL9AzJlmwlEZywgEG8YP_6uGNaQmWXlg7OYtp0bcRM26Fs

 

From Our Hearts to Yours, a BIG Thank you to all the Nursing Staff ❤️❤️

 

 

 

❤️❤️ Reaching out from Heart Children Ireland ❤️❤️

As Margaret Rogers, CEO and Linda Hogan, Administrator, we are reaching out to connect to you all. This is a very strange time and we do understand that everyone is coping with so many restrictions. We are hearing from so many of you and thinking of you all.

We continue to be available on our busy support line. At the moment, the best number to reach us on for any reason is 085 7237797 from 9am to 1pm Monday to Friday. Please do bear with us if you are trying to get through, the line is extremely busy and we will do our very best to answer your queries.

Unfortunately, many of our different services and fundraising activities have been put on hold for the moment (we would welcome any creative fundraising ideas at this difficult time).

We have had to suspend our regular coffee mornings at the Children’s Heart Centre and our drop in support service in Carmichael Centre where the HCI office is based. Our 30-year celebration conference (scheduled for June 13th) has been deferred and we are hopeful we can run this conference later this year.

We are working hard to continue some of our services where possible. For example, we are continuing to process grant requests from families where there is an urgent medical need. We are also particularly busy at the moment fulfilling our advocacy roles on behalf of our members. Should you need to link in with us do not hesitate to contact us on the support line mentioned above.

We are very happy to tell you that the Heart Children Ireland Psychology Service continues to operate at this time, albeit that it is a reduced service via telephone. Those who were due to meet Dr. Deirdre O’Neill, Chartered Clinical Psychologist, face-to-face in the coming weeks have been offered telephone appointments instead. Those who were availing of telephone support already are continuing to do so. Members who have not availed of the service to date are most welcome to contact Dr. O’Neill should the need arise.

The psychology service was set up to provide members with psychological support around cardiac issues. See the details of the service on the Heart Children Ireland website. Please note that the service has now been extended to support our members around psychological issues relating to Coronavirus (COVID-19). Members have been scheduling telephone appointments with Dr. O’Neill to discuss a wide range of related issues. Examples include: how to set up positive family structures for people of different ages during self-isolation; coping with health-related anxieties exacerbated by the virus; coping with virus-related restrictions; and dealing with relationship and mood challenges at this time. Dr. O’Neill, The Irish Psychology Service, can be contacted on 085 2739772 or irishpsychologyservice@gmail.com

We will be doing our very best to keep you updated on our services and also on updates from the HSE.

We look forward to meeting you all later in the year and to re activating all our services. Stay safe, we are thinking of you all.

Margaret and Linda

Due to COVID-19 Heart Children Ireland has made the decision to work from home. We will be back in the Carmichael Centre as soon as it is safe to do so. Please do not leave messages on the Heart Children Ireland phone but do contact us on 085 7237797 for the latest updates in relation to our service. Margaret and Linda will do their best to answer messages left on this number. Stay safe ❤️❤️❤️

**** You have kept us going for 30 years….
Can you help us to keep the Heart Children Ireland service up and running? We need to continue our supports to our members during this
difficult time. Please donate online by clicking the “donate now” button on our website. Our fundraising activity has stopped for the moment and we urgently need your support. You have kept us going for 30 years, we cannot do it without you. Our heartfelt thanks ❤️❤️❤️***

Over the past 18 years we have raised over €2m for the Cardiac Unit at Our Lady’s Children’s Hospital, Crumlin.

Windmill Weekend

Your Story
Share your story to help raise awareness of CHD and related conditions
Heart Children Ireland Fundraiser - Imogen runs in the Women's Mini Marathon
Imogen’s Story
I became unwell very quickly after birth and within 2 weeks was diagnosed with a PDA and ASD.
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